The Life and Times of Kelly and Ryan: Transferred!!

Friday night we finally got our wish and were sent from Great Ormond Street to Addenbrookes. We got to Addenbrookes about 9pm. Would have been sooner, but the patient transport car that showed up to take us came with a forward facing car seat in it. After having to quite obstinately tell the driver that I was not about to transport my 2 week old son recovering from heart surgery in a forward facing car seat he went back to his headquarters and got the correct car seat and came back.
Honestly my life has not changed terribly much from Great Ormond Street, as I'm still living in a small cubicle with Jansen, rarely getting outside or even out of the ward. The major bonus is that Ryan can come and go much more easily. Sunday he came in the morning and then went home in the afternoon, picked up Arie and brought him back so I could see him and eat dinner with him, then brought him home for bedtime and then came back in the evening. So much better than him having to spend 4 hours and a small fortune commuting every day and leaving Arie from early morning to late night. The other major change in my life in the last couple of days is that Jansen is feeding wonderfully now! Praise God! So instead of waking up at night, trying to get him to eat for a half hour, doing a tube feed, and finally expressing milk I just wake up when he cries, feed him for 10-15 minutes and he and I go back to sleep. The other nice thing is that my cubicle now comes with a bed. At GOSH they would bring fold out beds around 10pm and collect them at 8am so I would be up most of the night and then not get any naps during the day. Now when Ryan is around I'm taking multiple naps during the day (still making up for several sleepless nights) so I'm feeling loads better. And Jansen is giving me 3-4 hour stretches at night--how luxurious!
Unfortunately with breast feeding there is no great way to measure Jansen's input so they want us to stay around here until they are sure that he is gaining weight. So even though I'm sure he's eating well, it's very hard to convince the doctors. If only they could see his milk coma face when he falls asleep right after eating maybe they would believe me. :) The only other thing they are waiting on is to find out from GOSH if the swabs that they had been taking from his chest incision grew anything other than normal skin bacteria. His wound seems to be healing fine and he hasn't had a temperature and he's on prophylactic antibiotics, but again, they want to be absolutely certain before discharging him. So it looks like we'll be here until at least Tuesday, possibly Wednesday. The days are dragging on but this is the last lap. And in the meantime we're enjoying our little baby who is acting remarkably like a normal little baby. AND, he has absolutely no attachments now. At some point last night he pulled out his feeding tube and since we haven't used it in two days they aren't putting it back in.