11 May, 2011

Sorry for the lack of updates the last couple of days.
Tuesday night they were very worried about an infection in Jansen's central line.  The couldn't take that out though before they got another line in.  They spent an hour trying to get a line in somewhere and couldn't start any line so they put him on the emergency list to go into theatre to have another central line put in. That would mean going under general anesthetic and they would have to gather an entire cardiac team because the anesthetists are not allowed to take a heart baby into theatre without a cardiac team present.  Since it was about 8 at night by this time they weren't sure when that would happen and Jansen had to fast until he could get into theatre. After about two hours of waiting the doctor decided to try one more time to start a line and got one started in his forehead so he didn't have to go have a central line put in.  Thank God.
Yesterday they watched him closely for signs of infection, especially since one of his blood cultures grew something.  They added an antibiotic and he was stable for the day so the surgeon was happy to go ahead with the surgery today.  Last night we had to talk to someone from the surgical team about the risks of surgery and sign a consent form for it. We were told that since his coronary arteries were so abnormal there was about a 10% risk of death during surgery. And then we signed the forms.  I was pretty much a complete wreck after that. Jansen had one more feed at night (still doing very well feeding) so we got ourselves together and did his feed and sat with him for a while before going back to our room and trying to get just a little sleep.