Day 4 post-surgery

Jansen has been doing great!  What a trooper.  Overall he has been very stable and they have already weaned him off of many of his meds.
Yesterday he had an echocardiogram to check the function of his heart.  His heart function looked fine, but they did find a small area of fluid outside of his heart. They decided to give it a day and give him some increased diuretics to try to get his body to eliminate the fluid without having to go in and suck it out.  We'll find out today if that worked.  He has certainly gotten rid of a ton of fluid overnight, so we're praying that the fluid around his heart will have decreased.  Otherwise they will have to open his chest a bit to suck it out.  That would also delay him getting off of his ventilator, something they are planning to do early this afternoon if the echo looks okay.  However, small setback and huge praises that his heart is pumping away.  He has to be off of his feeds before they take the vent out, so he hasn't been fed since 6 this morning and is off of his sedatives so he's acting like a hungry little baby.  Nice to see him acting normal even if it's not the best circumstances.
Ryan, Arie, and my dad all left this morning to go back to Cambridge.  My dad will come back down to London tomorrow afternoon before leaving on Wednesday morning. As hard as it was to say goodbye to them, it is time for Arie to have a little normalcy in his life.  For those who have been praying for Arie, I just wanted to share that he has done amazingly well with all of the upheaval in his life.  He has gone to bed in 3 different hotel rooms in the last week and often had to take naps in his stroller. He's had to be entertained in several different hospital waiting rooms and put up with mommy and daddy regularly disappearing to go see the baby. Through it all he's been remarkably good natured and has kept smiling and giggling like normal. He has been a blessing to us and a welcome distraction to lift our spirits during tough times at the hospital. Nothing short of a miracle for an almost 2 year old, so thanks so much for all the prayers for him!